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Difficulties, illness, death

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Like our other resource topics, this is a work-in-progress. Focused on the social/emotional aspect of dealing with difficulties, including illness and death.

Find Help - search available help in your zip code area, for help with food, housing, bills, and more.

211 - a service of United Way, dialing 211 puts you in touch with a service professional in your area who can help you find available services.

Meal Train - a way to organize friends and family to help with meals, rides, chores, etc. 

Caregiver Action Network - "Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age." See their guides and resources.

NICU Parent Network's webinar series - free online webinars produced in association with the National Perinatal Association. Many topics covered - for NICU parents and staff.

Healing Hearts Baby Loss Comfort - this website has resources centered on baby loss and grieving, some of which are of help for other kinds of losses and grief. The resource list includes organizations, camps for siblings and also a book list.

Share Pregnancy and Infant Loss Support - for parents and all family members as well as professionals. Local groups and online communications.

Star Legacy Foundation is a nonprofit "dedicated to reducing pregnancy loss and neonatal death and improving care for families who experience such tragedies."

The Compassionate Friends - supporting family after a death.

A Haven - "Helping children grieve through a family centered approach" - see their informative resource pages.

Hand to Hold - helps families before, during, and after a NICU stay and infant loss

CuddleCots - when a baby dies, a cooling bassinet can provide a way for the baby's body to stay near the parents for a bit longer, offering time to grieve, to take photos or hand/footprints, to clip a lock of hair. Some hospitals offer these, many of them donated by parents who experienced a loss and raised funds to purchase one for other parents. We're grateful to Saul's Light, an organization in New Orleans working to support parents whose baby is in NICU as well a grieving parents, for bringing these to our attention.

Engaged Patients - "Engaged Patients is a national campaign under the guidance of the Empowered Patient Coalition non-profit with the vision that all patients and their loved ones have free access to the tools and the resources they need to be fully informed and participating members of their health care teams."

Go Wish cards - a way to talk about what's most important and make choices. 

Questions - for memories and laughter - from Rachel Stafford (Hands Free Mama) - a list of questions she developed when they learned her father-in-law was dying. 

Laurel's Kitchen Caring - Recipes for Everyday Home Caregiving by Laurel Robertson, Carol Flinders, Brian Ruppenthal (ISBN 0-89815-951-2). More than recipes, this can help you think about a loved one's specific needs and offer food and comfort). Published in 1997, this book is still available.

Funeral Consumers Alliance - a nonprofit organization offering guidance and resources for those planning a funeral.

"We don't 'move on' from Grief. We move forward with it" - Nora McInherny's Ted Talk, viewed by over 4 million people.






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