Skip to main content

Difficulties, illness, death

Body paragraph

Like our other resource topics, this is a work-in-progress. Focused on the social/emotional aspect of dealing with difficulties, including illness and death. 

NICU Parent Network's webinar series - free online webinars produced in association with the National Perinatal Association. Many topics covered - for NICU parents and staff.

Meal Train - a way to organize friends and family to help with meals, rides, chores, etc. 

The Compassionate Friends - supporting family after a death.

Hand to Hold - helps families before, during, and after a NICU stay and infant loss

Share Pregnancy and Infant Loss Support - for parents and all family members as well as professionals. Local groups and online communications.

CuddleCots - when a baby dies, a cooling bassinet can provide a way for the baby's body to stay near the parents for a bit longer, offering time to grieve, to take photos or hand/footprints, to clip a lock of hair. Some hospitals offer these, many of them donated by parents who experienced a loss and raised funds to purchase one for other parents. We're grateful to Saul's Light, an organization in New Orleans working to support parents whose baby is in NICU as well a grieving parents, for bringing these to our attention.

Go Wish cards - a way to talk about what's most important and make choices. 

Healing Hearts Baby Loss Comfort - this website has resources centered on baby loss and grieving, some of which are of help for other kinds of losses and grief. The resource list includes organizations, camps for siblings and also a book list.

Questions - for memories and laughter - from Rachel Stafford (Hands Free Mama) - a list of questions she developed when they learned her father-in-law was dying. 

Laurel's Kitchen Caring - Recipes for Everyday Home Caregiving by Laurel Robertson, Carol Flinders, Brian Ruppenthal (ISBN 0-89815-951-2). More than recipes, this can help you think about a loved one's specific needs and offer food and comfort).

Funeral Consumers Alliance - a nonprofit organization offering guidance and resources for those planning a funeral.

"We don't 'move on' from Grief. We move forward with it" - Nora McInherny's Ted Talk, viewed by over 4 million people.